Track: Multidisciplinary
Rebecca Kruse-Jarres, MD/MPH (she/her/hers)
Executive/Medical Director
Washington Center for Bleeding Disorders
Seattle, United States
Silvina Graña, Clinical Psychologist (she/her/hers)
Psychologist
Fundación de la Hemofilia de la Argentina
Buenos Aires, Argentina
Brian O'Mahony, FACSLM
CEO
Irish Haemophilia Society
Dublin, Ireland
Margareth Ozelo, MD, PhD (she/her/hers)
Professor
Hemocentro Unicamp, University of Campinas
Campinas, Brazil
Dawn Rotellini (she/her/hers)
Chief Operating Officer
National Hemophilia Foundation
Gibsonia, United States
Treatment is more than just about medication. Health care professionals and the patient community must work together to improve the health delivery value chain and patient health outcomes. Join this session to learn why it is important for women and girls to be included in clinical trials, and why and what are the benefits of including underserved communities. Discover how to approach and develop a successful advocacy initiative for new therapies in your local setting. Identify the psychological aspects the patient community must consider when moving to better treatment options.
Chair: Rebecca Kruse-Jarres, MD/MPH (she/her/hers) – Washington Center for Bleeding Disorders
Speaker: Dawn Rotellini (she/her/hers) – National Hemophilia Foundation
Speaker: Margareth C. Ozelo, MD, PhD (she/her/hers) – Hemocentro Unicamp, University of Campinas
Speaker: Brian O'Mahony, FACSLM – Irish Haemophilia Society
Speaker: Silvina Graña, Clinical Psychologist (she/her/hers) – Fundación de la Hemofilia de la Argentina
Chair: Rebecca Kruse-Jarres, MD/MPH (she/her/hers) – Washington Center for Bleeding Disorders