Lessons learnt from isolation

Location: Atlantico

Chair(s)

Mohsena Olath

Operations Manager
Haemophilia Association of Mauritius, Mauritius

Speaker(s)

Carla Daffunchio, PT (she/her/hers)

Head of Rehabilitation Service
Fundacion Hemofilia de Buenos Aires
Buenos Aires, Argentina
Mathieu Jackson, MA (he/him/his)

President
Canadian Hemophilia Society, Quebec Chapter
Montreal, Canada
Luis Melgar (he/him/his)

Vice President
Panamanian Foundation of Hemophilia
Panama, Panama
Diane Standish, MSW, LSW (she/her/hers)

Social Worker
Butler County Community College
Butler, United States

In our changing world, prolonged periods of social isolation and lifestyle disruption may continue to occur due to the possibility of prolonged illness, changing socioeconomic conditions, conflict, and more. This session will provide professionals with information and strategies as they navigate this subject matter with patients and families impacted by bleeding disorders. Hear more about the lessons learned from patients in developed and developing countries and discover preventative therapeutic interventions to better support at-risk patients today.

Presentations:

11:30 - 11:31 ART

Chair
Chair: Mohsena Olath – Haemophilia Association of Mauritius
11:31 - 11:45 ART

Mental health/ psychosocial
Speaker: Diane Standish, MSW, LSW (she/her/hers) – Butler County Community College
11:45 - 12:00 ART

Experience from local HTC - telehealth & physio program
Speaker: Carla Daffunchio, PT (she/her/hers) – Fundacion Hemofilia de Buenos Aires
12:00 - 12:07 ART

Pros and cons to isolation - developed world
Speaker: Mathieu Jackson, MA (he/him/his) – Canadian Hemophilia Society, Quebec Chapter
12:07 - 12:14 ART

Pros and cons to isolation - developing world
Speaker: Luis Manuel Melgar (he/him/his) – Panamanian Foundation of Hemophilia
12:14 - 12:30 ART

Discussion
Chair: Mohsena Olath – Haemophilia Association of Mauritius